"A Critical Analysis of the Implications for Genetic Privacy and Consent Rights in Congress’ Proposed ‘Newborn Screening Saves Lives Act of 2007’"
“Genetic privacy, parent consent and individual self-determination rights are at
stake with the U.S. Senate’s recent passage of S. 1858, the ‘Newborn Screening Saves Lives Act of 2007.’ This paper outlines five key issues of concern.”